Because of you...

Harry was empowered to live the best life he could

We were childhood sweethearts. We were only 13 when we first met. We were best friends for two years, and by age 15, we became a couple. When we were 18, we went to university together in Reading, and after our studies, we moved back to Swindon.

Harry was a super fit and healthy 24-year-old when he began to experience unusual back pain in March 2020. We first thought it was a herniated disc, and he started taking strong anti-inflammatories and was told to rest.

Over the week or so that followed, he began to lose sensation in his feet which rapidly spread up his right leg. An MRI revealed that his pain was caused by a 4.5cm tumour in his spine. We were all so shocked.

After hours of intensive spinal surgery, the doctors obtained a sample which revealed his diagnosis whilst further scans confirmed spinal metastases. Within a couple of weeks, Harry lost all sensation and movement from the waist down.

In June 2020, Harry completed six weeks of high-dosage radiotherapy to his brain and spine in combination with chemotherapy. We breathed a huge sigh of relief when told the news that this had resulted in significant shrinkage to all areas of growth.

Harry was making excellent progress with daily physiotherapy and started to regain some movement in his legs again. In November 2020, he reached his goal of standing by the end of the year (albeit with a power-assisted machine)! We were so overjoyed to see such encouraging signs. However, later the same month, a review scan revealed bad news. Despite the chemotherapy, there had been significant progression. Shortly afterward, Harry lost all leg function again. To say we were devastated is an understatement.

Harry reached a point where he needed a lot of care and he had become very dependent on the people around him. Even though Harry knew he didn’t have long left, he was able to come to terms with his fate. He showed incredible inner strength. He wrote journals which really helped him to open up and start talking about what was going to happen.

In March 2021, we got married in a small, intimate ceremony at Harry’s mum and dads’ house. Just a few weeks later, in May 2021, Harry died at his parents’ home, surrounded by his loved ones.

The care we received at Prospect Hospice was incredible, I don’t associate Prospect with death and dying and they are totally onboard with living and empowering you to live the best life you can. The care they offer goes far beyond medicine. They were a huge influence on how he was able to live as positively as he did with his circumstances.

We set up a crowd-sourcing page to fund Harry’s care, unfortunately, he passed away before we could use the money. As a family, we decided to use the money to fund a psychotherapist at Prospect Hospice. We raised nearly £100,000 for Harry meaning that other patients and families received care and support during such a terrible time.

Harry touched many hearts. Our life together was short, but our love and memories were eternal. He inspired beauty and is the reason I’m grateful for life. I miss my sweet husband constantly, yet he’s with me in each way I honour his short but remarkable life.

 

 

 

Because of you ...

We were able to support Harry and his family, providing him with the care he needed to spend his final days at home, surrounded by loved ones and offering Sinead and their families precious moments together. Will you help us be there for more families like Sinead’s.

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